Kimberly C. Paul wants to radically change the way people face end of life, and she’s using her extensive experience as a storyteller to do just that. From the set of Saturday Night Live in New York City, to casting for CBS daytime, Kimberly has spent the last 17 years telling a very different kind of story. As Vice President of Outreach and Communications for Lower Cape Fear Hospice, she used a myriad of award-winning marketing strategies to share real stories about death and dying and the keys to making every moment matter.
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Mike Ferris is a nationally recognized expert in home care and hospice sales, marketing, and customer service. He has consulted with many of the most successful home care and hospice organizations in the country. Mike and his team deliver consulting and training programs based on their combined experience and expertise. Their services focus on referral management to maximize admissions and increase partner loyalty.
https://healthcarestrategica.com
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A practicing physician for over 30 years, Dr. Martha Calihan blends her knowledge of Functional and Integrative medicine with the mystical and spiritual, creating the space to help people heal on all levels. She practices and teaches Mindfulness, offers workshops in the US and in Ireland, and has done extensive work in death and dying. She lives and practices in Leesburg, Virginia.
In this memoir, A Death Lived, Dr Martha Calihan shares the story of her husband's final illness and death to address some of the big questions about end-of-life care and the dying process.
Her unique perspective as both a wife and a physician allow her to explore these issues on a personal and professional level while also weaving in some of the mystical aspects of dying that she witnessed.
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The Macy Catheter was invented by Brad Macy, a veteran hospice nurse and recipient of 2013’s National Hospice and Palliative Care Nurse of the Year Award. The inspiration for its invention came directly from a memorable patient interaction.
Over the years, Brad has seen thousands of difficult symptom management cases while assisting patients and their families in the middle of the night. The most challenging cases were when the patient could not swallow medication and end-of-life symptoms were spiraling out of control.
One night, Brad had a patient who was experiencing severe terminal agitation. The patient was suffering; he was shouting, he was climbing out of bed, and he was clearly very frightened. Brad got orders to administer a sedative that would help calm the patient. Since the patient was unable to swallow, the prescribed route of administration was per rectum. He administered the sedative in tablet form rectally as prescribed, and waited “that difficult wait” for the patient to calm while giving the patient’s son emotional support. An hour later, the patient was worse. The desire of both the patient and his family were that he be able to die peacefully and at home. Brad called the doctor again for a repeated dose of sedative. While preparing to administer the second dose, he realized that the previous dose was still undissolved in the patient’s rectum.
Brad was left with a dilemma that is well-known by every experienced hospice nurse: how to help a patient who is experiencing severe symptoms and unable to swallow reach a state of comfort within the home setting.
Motivated to reduce the severe agitation and suffering of his dying patient, Brad found a way to give the medication as a suspension that would absorb quickly in the patient’s dry rectum. He crushed the tablet, added water, and administered the medication suspension into the rectum with a urinary catheter. The patient calmed down quickly and was sound asleep within thirty minutes. The patient’s son was deeply grateful for an easy solution that controlled his father’s symptoms with minimal subsequent discomfort or disruption. The patient died peacefully at home a few days later.
Given the successful outcome of this case, Brad decided to create an optimized device to facilitate this intervention. He subsequently co-founded Hospi with the goal of making a commercial device available that could provide comfort and relief for patients and their loved ones on a much larger scale than would be possible as a lone practitioner.
Hospi developed the Macy Catheter to improve the patient and caregiver experience with serious or terminal illness. The Macy Catheter is designed to maintain patient comfort and dignity while leveraging the speed and established benefits of rectal administration. The Macy Catheter is of particular relevance during end of life, as it can help patients remain comfortable in their home. It can also reduce the need for more costly and complex administration routes like intravenous delivery, which is seldom used in the hospice setting. The patented device has received 510(k) clearance from the U.S. FDA.
To learn more about Hospi Corporation, click here.
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Hospice physician. End-of-life researcher. Acclaimed author of Death Is But a Dream. Death Is But a Dream, based on Dr. Kerr’s extensive research with hospice patients and their families in Buffalo, NY, highlights and validates the powerful dreams and visions often experienced at end of life that bring comfort and meaning to the dying process.
Dr. Kerr is the Chief Executive Officer and Chief Medical Officer of Hospice & Palliative Care Buffalo, a valued member of our Coalition and parent organization of Hospice Buffalo. Dr. Kerr wrote Death Is But a Dream, an examination of ELEs, based on his experience with hospice patients and their families in Buffalo, NY.
“Surviving Death” is a six-part series that explores the end of life through personal stories and research on near-death experiences. The fifth episode documents Dr. Kerr’s conversations with hospice patients of all ages who report seeing and interacting with deceased loved ones. These experiences can offer comfort for people as they near the end of life and, in turn, for their caregivers and loved ones.
“We’ve done studies of hundreds of bereaved people and it’s very clear that what is good for the patient is good for the loved ones, and it absolutely soothes them in grief,” Dr. Kerr explains during an interview for the series.
“Surviving Death” is now available to stream on Netflix here. For more information on Hospice & Palliative Care Buffalo, click here. You can also learn more about the work of Dr. Kerr and his fellow researchers by clicking here.
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Just Call Bill specializes in providing technology services to senior adults and their families. We are the company that loves working with seniors! Our team of technology professionals has the experience to take care of your phone, tablet, laptop and computer and more. This is an ideal service for you, your mom, dad, aunt, uncle and grandparents who don’t live close by family members and need assistance with their technology. Bill is a proven instructor at OLLI Furman, graduate of the Seniors Leaders of Greenville (OLLI Furman), instructor at Wofford Lifelong Learning Institute, member of the Upstate Senior Network, and has worked with several senior communities and centers, as well as hundreds seniors. He understands the value of relationships and successfully partners with businesses and organizations to provide services to the 55+ adults and their families.
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In 2014, Margo Fowke’s 21-year-old son, Jimmy, died after an eight-year battle with brain cancer. A year later, her mother died. In 2017, the Loomis resident started the website Salt Water (findyourharbor.com). The website is chock-full of blogs with topics ranging from loss to caring for yourself after loss. It also offers resources for the bereaved as well for tips for comforting the bereaved. (It’s not so much what you say but that you say it that matters.) Margo Fowkes, Founder of Salt Water, talk about the ways her grief has changed over time and offers hope for other grievers.
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Jennifer O’Brien helps people talk about caregiving and end of life. She encourages compassionate, real conversation through her book, The Hospice Doctor’s Widow: A Journal, where she shares her story of caregiving through collages and writings.
After years of caring for people with serious illness as a physician, Jennifer’s husband, Bob Lehmberg, was diagnosed with a stage IV, metastatic cancer. But caregiving for the man who had made a 40-year career of caregiving as a physician was not easy. When Jennifer’s husband was diagnosed and later after he died, she turned to what had brought her comfort for years—art journaling. She documented and depicted the raw, honest, beautiful and exhausting reality of caregiving through collage, tableaus, notes and observations. She included much of the wisdom and perspective she learned from her husband in his years as a physician.
When the book was just a stack of pages, she took it to a friend who had just been diagnosed with a rare, advanced bladder cancer. After reading the book and knowing his own prognosis, he said, “You need to give this to my wife. She needs to understand what is ahead and feel supported as my caregiver.” After seeing how much that stack of pages helped them in his final months, Jennifer knew that what she had created might help others.
Having been a practice management consultant and educator to physicians for 30+ years, an executive administrator for two large medical practices, in administration at three major academic medical centers, the wife and now widow of a physician, Jennifer has a unique and thorough understanding of healthcare. Still, with all of this experience, caregiving for her dying husband was both the greatest honor and challenge of her life.
Now Jennifer works to help caregivers feel supported while caring for others and taking care of themselves.
https://www.hospicedrswidow.com/about
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Ken Ross, son of Dr. Elisabeth Kübler-Ross, is the founder of the EKR Foundation (2006) and President (2006-2013 & 2018-Present). He also served on the board of the Elisabeth Kübler-Ross Center from 1989-2005. Ken was the principal care provider for his mother in the last 9 years of her life until her passing in 2004.
His responsibilities include handling over 80 publishers of Dr. Ross’ work, public relations, copyright & trademark issues, website maintainance, developing foreign Kübler-Ross chapters, developing strategic partnerships, as well as preserving her archives. While growing up, he traveled with her extensively while on her numerous foreign trips witnessing her lectures and workshops. Ken has lectured on his mother’s legacy for hospices and various conferences in South America, Asia, and Europe. There are several film projects that Ken is currently a consultant on including a major motion picture, a television series and various documentaries, both foreign and domestic.
See Ken Ross on on YouTube.com
A professional photographer by trade, he has photographed 101 countries.
http://archive.azcentral.com/news/articles/2008/06/19/20080619sr-kenross0621-ON.html
Author, Real Taste of Life: A Journal by Ken Ross and Elisabeth Kübler-Ross, 2002
Tea with Elisabeth by: Ken Ross, Fern Stewart Welch, and Rose Winters, 2009
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