Today I’m speaking with Kimether Redmon about: -Trauma-informed medical care. -Some biases a person may face in the medical setting. -Personal biases that Kimether has faced. Who is Kimether Redmon? She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment. Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own diligence as a healthcare provider and educator that prioritizes high quality, trauma informed care to all. Kimether is also the vice president of Peach Corps, which is on a mission to help those with PCOS, Endo, Adeno and chronic conditions. Clickable links at insixteenyears.com/episode120 CONNECT WITH KIMETHER: Peach Corps IG: @peach_corps
 Kimether IG: @therebelliousuterus
 Kimether’s podcast IG: @endothickofit CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Today I’m speaking with Kimether Redmon about: -Tips to improve our medical appointments -How to maximize the short amount of time we have with the practitioner. -How to be more specific when describing our symptoms -Our personal experiences with uncomfortable medical settings. Who is Kimether Redmon? She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment. Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own diligence as a healthcare provider and educator that prioritizes high quality, trauma informed care to all. Kimether is also the vice president of Peach Corps, which is on a mission to help those with PCOS, Endo, Adeno and chronic conditions. Clickable links at insixteenyears.com/episode119 CONNECT WITH KIMETHER: Peach Corps IG: @peach_corpsKimether IG: @therebelliousuterusKimether’s podcast IG: @endothickofit CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Today we speak with Dr. Shilpa Rao, who is a dentist by profession and an endo crusader by passion. Shilpa has a YouTube channel called The Endometriosis Crusader in which she interviews patients and professionals about various topics related to endometriosis and reproductive health. Shilpa shares about her personal experiences with cultural and social barriers to care, as well as her hopes for endometriosis care in the future in India. Clickable links at insixteenyears.com/episode118 CONNECT WITH SHILPA Instagram: @endostrongg YouTube: Endo Crusader https://www.youtube.com/@shilpaa1980 CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

We continue to talk about work accommodations under the Americans with Disabilities Act. In part 2, we discuss medical documentation, examples of what are reasonable vs unreasonable accommodations, and telework. DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified professional for advice if you are in a situation where you want to ask for work accommodations. Clickable links at insixteenyears.com/episode117 --OTHER REASONABLE ACCOMMODATION ISSUES (Enforcement Guidance on Reasonable Accommodation and Undue Hardship under the ADA) --Telework as a Reasonable Accommodation --Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act --Job Accommodation Network’s Practical Guide to Accommodations CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

We are going to talk about work accommodations under the Americans with Disabilities Act. In part 1, we discuss what accommodations are vs accessibility in general, who qualifies for accommodations under the ADA, and some ideas on how and when to request accommodation. DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified professional for advice if you are in a situation where you want to ask for work accommodations. Clickable links at insixteenyears.com/episode116 --Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act --Job Accommodation Network’s Practical Guide to Accommodations --Your Employment Rights as an Individual with a Disability --Ashley Jacobson: Changing Disabled Employment with Accommodations --EEOC Enforcement Guidance on Reasonable Accommodation and Undue Hardship Under the Americans with Disabilities Act CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physicians alike. He has presented his theory of origin of endo, Mulleriosis, around the world. TODAY WE DISCUSS:—“Sins of the endometriosis literature.”—The recent research that came out with Horvath's pan-tissue clock and the origin of endometriosis.—Claims on the Lupron website is that it’s “used for the reduction of endometriotic lesions.”—Microscopic endometriosis.—The ESHRE updated endometriosis guidelines around diagnosis of endo. IN EPISODES 67 AND 68 (go back and check them out!), we did part 1 and part 2, in which we discussed:—endometriosis treatments—excision surgery—endometriosis recurrence—the embryonic origin of endo—why he considers Sampson’s theory of retrograde menstruation the most dangerous theory in the history of medicine—what endo does in the body—obstacles to endometriosis treatment CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Many people regret having spent thousands of dollars on naturopathy, coaches, and functional medicine that didn’t help them, that they could have instead spent on excision surgery, a registered dietitian, pelvic floor therapy, SIBO treatment with a gastroenterologist, or other types of doctors/treatment. Today Amy speaks with Kate Boyce (she/her) on common red flags to look out for in wellness culture. Kate is a board certified patient advocate and endometriosis patient herself. She is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Clickable links at insixteenyears.com/episode114 --Hormones/HRT - write up from my website --Wellness Culture - write up from my website --Naturopathy and Functional Medicine - write up from my website --The "Endo Diet" - write up from my website CONNECT WITH KATE: INSTAGRAM: @endogirlsblog WEBSITE: https://endogirlblog.com/ CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. For the past 20 years, he’s been testing the hormone receptors of endometriosis lesions. Today we discuss his findings and thoughts on endometriosis and hormones. Dr. Dulemba also joined us in episode 106 on robotic excision surgery and 109 on adhesions, so if you missed those, please check them out! Also I’d like to thank Kate from EndoGirlsBlog for brainstorming these questions with me! —CONNECT WITH DR. DULEMBA: Dr Delumba works at the Women’s Centre in Denton, Texas https://www.womenscentre.net/ Resources below - Clickable links at insixteenyears.com/episode113 --Information on HRT –Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here. –Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596 —Progesterone Resistance in Endometriosis – Article on Nancy’s Nook. –-Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992

Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population. In 2023, Julia was among the first group of recipients of the Mentoring for Anti-Racism and Inclusive Excellence (MARIE) program. With her MARIE grant, she seeks to further understand the specific barriers Black women with endometriosis encounter in terms of structural racism, systemic discrimination, and internalization of the Strong Black Woman schema. Julia speaks to us today about her research, how a lack of representation affects Black endometriosis patients, and her hopes for the future of endometriosis care in the Caribbean. CONNECT WITH JULIA INSTAGRAM @endoandpcosbb

We talk about the grief that can accompany having a chronic illness. When endometriosis causes us ongoing losses in multiple aspects of our life, over and over again, it’s absolutely heartbreaking. We talk about some reasons why we might grieve due to chronic illness, what we personally grieve, and how our grief has impacted our lives. Clickable links at insixteenyears.com/episode111 --Grieving Chronic Illness and Injury — Infinite Losses CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

We speak with Arti Shah (she/her), a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is to positively impact the narrative of living with endometriosis through self-advocacy, play therapy and personal engagement. Arti advocates so that the next generation doesn’t have to battle this debilitating condition as we have and can have a better quality of life from an early age. Arti is the host of A Ray of Sunshine, a podcast that has insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis. In this episode, Arti shares about her personal experiences with cultural and social barriers to care, as well as exciting initiatives that are improving body literacy and access to excision. Clickable links at insixteenyears.com/episode110 --A Ray of Sunshine - Arti’s podcast "involves insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis.” --The Palgrave Handbook of Critical Menstruation Studies --Connect with Arti on Instagram @artiphotography