An Irreverent interview podcast for people with chronic illness, invisible illness, disability, and chronic pain.
Monica Michelle is joined by consultant and podcast host Nick Clemmons.
Nick lives with Sickle Cell Disease.
In this episode, Monica and Nick discuss:
00:42 - ADA, Title IX, and disability access in schools
20:08 - How Nick makes and achieves opportunities
28:40 - Media and disability
40:42 - How to respectfully be concerned about someone else’s needs
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by consultant and podcast host Tim Reitma.
Tim lives with Crohn's Disease.
In this episode, Monica and Tim discuss:
00:47 - Tim's diagnosis
06:31 - How and why Tim applies self advocacy
15:41 - Why Tim started his podcast
22:42 - Invisible condition etiquette
31:00 - What HR can do better for employees with invisible illness
39:31 - Tools Tim uses to care for his Crohn’s outside the home
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by artist and disability advocate Sunny Ammerman
Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum".
In this episode, Monica and Sunny discuss:
00:45 - What VR/AR offers for chronically ill and disabled folks
11:57 - Sunny’s conditions and how she copes with them
17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences
37:13 - The social aspects of virtual gaming
51:32 - What opportunities VR has for the future
1:04:49 - Sunny’s VR support group
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by Journalist Julia Metraux.
Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID.
In this episode, Monica and Julia discuss:
00:32 - Julia's diagnostic journey
07:02 - Julia’s work reporting on the online community of chronic illness
16:32 - The effect of Internet communities on chronically ill and disabled folks
26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyle
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author & physiotherapist Kevin Hunt.
Kevin lives with chronic pain.
In this episode, Monica and Kevin discuss:
00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain
06:44 - The Hexagon Model for managing your life’s needs
14:00 - Putting aside the idea of a “quick fix”
19:45 - Kevin’s personal experience with pain and how he uses it with patients
28:44 - Kevin’s book, “Pain: The Ultimate Mentor”
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author & personal trainer John K. Frazier.
John lives with ankylosing spondylitis.
In this episode, Monica and John discuss:
00:50 - John’s business & diagnosis
07:19 - Chronic pain olympics
09:31 - Talking about & hiding a diagnosis
15:09 - Personal triumph
18:24 - Staying in the present
23:29 - The superman complex
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by musician Laura Mustard.
Laura lives with VATER syndrome.
In this episode, Monica and Laura discuss:
00:30 - Laura’s new EP / Monica’s recent COVID experience
05:32 - Relationships with chronic illness
11:20 - Image and self acceptance with disability
15:32 - Laura’s creative process and current projects
20:05 - Pursuing creativity despite social media attention
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Amanda Chay.
Amanda lives with Sjögren’s and Lupus.
In this episode, Monica and Amanda discuss:
00:26 - Intro + The Girlfriend’s Guide to Lupus
02:17 - Amanda’s diagnosis
10:09 - Amanda’s outlook on writing
17:11 - Navigating chronic illness with kids & family
23:29 - Labels and roles
26:24 - Flare reads & closing remarks
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Alexis Kline.
Alexis lives with Dysautonomia.
In this episode, Monica and Alexis discuss:
00:28 - Alexis’s diagnosis & dog
07:18 - Sick teenager road map
10:00 - Alexis’s book & workflow
16:25 - Having an isolated diagnosis
20:50 - Wildlife photography, purchases
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Emily Falcon.
Emily lives with ALCAPA.
In this episode, Monica and Emily discuss:
00:28 - Being a sick kid & Emily’s book title
07:28 - Mortality
10:16 - Portrayal of disability in media
12:21 - Post-surgery support
19:23 - Having a public body
23:43 - Self-motivation
29:46 - Emily’s tips for adventures
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by writer and entrepreneur Micaela Hoo.
Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease.
In this episode, Monica and Micaela discuss:
00:24 - The start of Micaela’s diagnosis journey
14:42 - Gastroparesis & Micaela’s research
16:52 - Healthcare insurance, wait times, and bad docs
21:52 - Micaela’s research pays off
25:52 - Medical closure
29:33 - Micaela’s businesses
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Hosted on Acast. See acast.com/privacy for more information.
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