Gluten Free RN, Nadine Grzeskowiak, RN BSN CEN, discusses gluten intolerance, celiac disease, the Paleo lifestyle and health.
What did we know about celiac disease in 1953?
The truth is, we knew quite a bit about sensitivity to gluten 65 years ago when Matilda Babbitz’s son Bobby was diagnosed with celiac disease. A nurse by profession, Matilda carefully observed her baby and kept detailed records of his reactions to foods, working with doctors to determine an appropriate diet for Bobby.
Today, the Gluten Free RN is sharing an article published in the March 1953 edition of the American Journal of Nursing written by Matilda herself. She covers how Bobby presented with celiac disease at six months of age and the dramatic change in his health and behavior after a diet change.
Nadine discusses the systematic approach Bobby’s healthcare team took in creating a custom diet, the relationship between the baby’s irritability and his inability to digest food, and his growth and development before and after treatment. She also addresses the misunderstanding that children will ‘grow out of’ celiac disease, explaining that we’ve since learned patients must adhere to a 100% gluten-free diet for life. Listen in for insight around what we can learn from past case studies of celiac disease and understand what we already knew about celiac disease back when Eisenhower was president and Gentlemen Prefer Blondes was on the big screen!
What’s Discussed:How Bobby presented with celiac disease at six months of age
The dramatic change in Bobby’s behavior after a diet change
The new pediatrician’s approach when Bobby’s progress stalled
The relationship between irritable behavior and the inability to digest foods
Bobby’s growth and development before and after diagnosis
How Bobby’s mother dealt with social pressure to eat with others
The chronic nature of celiac disease
Nadine’s insight around what we knew about celiac disease in 1953
‘Bobby Has Celiac Disease’ in the American Journal of Nursing
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
Subscribe to The Gluten Free RN Podcast:‘Know your own truth and let that guide you.’
How do you cut through the noise and misinformation around gluten sensitivity and celiac disease in order to make the best choices for your health and happiness? By tapping into your intuition and asking WHY when the answers don’t feel right—and reaching out to the right people for support when you need it.
Today, the Gluten Free RN is sharing her Top 10 Musings and Truths for health and wellbeing, empowering you to be self-protective and surround yourself with the people who genuinely care enough to speak up for—and with you. She shares the value in setting goals for your physical and mental health and taking your power back from the people who may have victimized you in the past.
Nadine also encourages you to get educated and engage in critical thinking, questioning the information you are given and saying ‘no’ to anyone who suggests you eat gluten—even if they happen to be a doctor. Listen in to understand the idea that ‘you are your own experiment’ and learn to be the healthiest YOU you can be by committing to a 100% gluten-free diet!
What’s Discussed:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
Much existing propaganda claims that African Americans do not suffer from celiac disease. Even the Gluten Free RN was surprised to find out that her adopted daughter had a genetic predisposition to the disease back in 2006, as research available at the time regarded the HLA-DQ2 and HLA-DQ8 genes to be primarily Caucasian traits. And until we take steps to conduct a mass screening, we simply don’t know how common celiac disease is among people of African descent.
Today, the Gluten Free RN is exploring celiac disease in the African American population. She covers a 2006 study out of Columbia University that assessed African American celiac patients, discussing the variety of ways the subjects presented with celiac disease and the potential reasons for their poor compliance with the prescribed gluten-free diet.
Nadine also considers the prevalence of celiac disease on the continent of Africa, explaining why she believes the number of celiac patients will explode with the population’s growing exposure to wheat. Listen in for the Gluten Free RN’s insight on other health issues that may point to undiagnosed celiac disease and learn how we can prevent celiac disease among the African American population with access to testing, social support and gluten-free food!
What’s Discussed:The 2006 Columbia University study of celiac disease in African Americans
Why patients in the Columbia study demonstrated poor dietary compliance
Nadine’s prediction around the number of celiac patients in Africa
The statistics regarding the mortality burden of celiac disease
The overlap between diabetes and celiac disease
The health issues that may indicate undiagnosed celiac disease
How to prevent celiac disease among the African American population
Celiac Disease and How Gluten Affects Your Skin EP011
‘Your Skin on Gluten’ on YouTube
‘Celiac Disease in African-Americans’ in Digestive Diseases and Sciences
‘First Global Estimates of Coeliac Disease and Its Mortality Burden’ in Science Daily
Neurological Disorders Associated with Celiac Disease EP012
‘HLA Typing and Celiac Disease in Moroccans’ in Medical Sciences
University of Chicago: Celiac Disease Facts and Figures
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
Approximately 50% of ER visits are associated with abdominal pain, and the vast majority of those patients are given a diagnosis of ‘abdominal pain of an unknown origin’ and directed to come back if the condition gets worse. This is little comfort to people suffering from severe discomfort who need answers around the cause of their belly pain, not just medication to mask it temporarily. Could undiagnosed celiac disease be the source of their suffering?
Today, the Gluten Free RN is diving into the issue of belly pain and undiagnosed celiac disease, discussing the expensive testing often conducted to determine the cause of abdominal discomfort—testing that rarely includes a celiac panel. She covers several of the common misdiagnoses of celiac patients as well as the incredibly high prevalence of abdominal pain in children.
Nadine shares the case study of a child-patient who was misdiagnosed with appendicitis and the research published in Digestive and Liver Disease outlining the unnecessary surgical interventions endured by undiagnosed celiac patients. Listen in for the Gluten Free RN’s advice to patients with idiopathic abdominal discomfort and learn why no one should suffer from belly pain!
What’s Discussed:The statistics around ER visits and abdominal pain
The most common abdominal pain diagnoses
How patients are treated for idiopathic abdominal pain
The testing to find the cause of chronic abdominal pain
How many children suffer from belly pain
Nadine’s patient who received a misdiagnosis of appendicitis
A research study around abdominal surgery and celiac disease
Nadine’s advice for patients diagnosed with idiopathic abdominal pain
‘Increased Rate of Abdominal Surgery Both Before and After Diagnosis of Celiac Disease’ in Digestive and Liver Disease
‘Screening for Celiac Disease in Children with Recurrent Abdominal Pain’ in the Journal of Pediatric Gastroenterology and Nutrition
‘Effect of a Gluten-Free Diet on Gastrointestinal Symptoms in Celiac Disease’ in the American Journal of Clinical Nutrition
‘Clinical Features and Symptom Recovery on a Gluten-Free Diet in Canadian Adults with Celiac Disease’ in the Canadian Journal of Gastroenterology
‘Association of Adult Celiac Disease with Surgical Abdominal Pain’ in Annals of Surgery
‘A New Insight into Non-Specific Abdominal Pain’ in The Annals of The Royal College of Surgeons of England
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
If you are being treated for a blood disorder, it is time to look deeper and explore the underlying cause. Rather than simply addressing iron- or B12-deficiency anemia in isolation, ask WHY you have a deficiency in the first place. It is possible that damage to your intestines caused by gluten is preventing your body from absorbing the nutrients necessary to grow your red blood cells and keep your immune system healthy. And anemia is not the only blood disorder associated with celiac disease and non-celiac gluten sensitivity!
The Gluten Free RN is taking a closer look at the hematologic manifestations of celiac disease from anemia to hyposplenism. She explains the connection between disorders of the blood and bones, offering insight around why men with both anemia and osteoporosis are also likely to have celiac disease.
Nadine discusses the danger in taking H2 blockers or proton pump inhibitors for GERD long-term, describing how those medications decrease the gastric acid necessary for breaking down food. She also addresses what you can do to identify any nutritional deficiencies in your blood and reminds us why celiac patients have difficulty absorbing the nutrients necessary to form red blood cells. Listen in to understand how the skin reflects what’s happening internally and learn how to prevent a number of blood disorders with a gluten-free diet!
What’s Discussed:The hematologic manifestations of celiac disease
Why iron supplements didn’t solve Nadine’s anemia
The connection between anemia, osteoporosis and celiac disease
The danger of taking H2 blockers and PPIs long-term
How to uncover potential nutrient deficiencies in your blood
The conclusions of the 2007 study in Blood
The fat-soluble vitamins
The connection between DH and celiac disease
‘Hematologic Manifestations of Celiac Disease’ in Blood
Celiac Disease and Your Spleen
Dr. Ben Lynch: Folic Acid vs. Folate
‘The Thrombophilic Network of Autoantibodies in Celiac Disease’ in BMC Medicine
‘Hematologic Manifestations of Celiac Disease’ in Celiac Disease— From Pathophysiology to Advanced Therapies
‘Sarcoidosis, Celiac Disease and Deep Venous Thrombosis: A Rare Association’ in Balkan Medical Journal
‘Celiac Disease Manifesting with Deep Venous Thrombosis: A Case Report’ in Govaresh
‘How Often Do Hematologists Consider Celiac Disease in Iron-Deficiency Anemia?’ in Clinical Advances in Hematology & Oncology
‘Deep Vein Thrombosis Associated with Celiac Disease’ in Bratislavske Lekarske Listy
‘Celiac Disease Presenting with Immune Thrombocytopenic Purpura’ in Case Reports in Hematology
‘Lower Extremity Deep Vein Thrombosis Associated with Gluten-Sensitivity Celiac Disease’ in Terapevticheskii Arkhiv
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
Your gastrointestinal tract is approximately 30 feet long, and it runs from your mouth all the way to the anus! We know that celiac disease can impact any part of the digestive tract. But there is another disease that wreaks havoc on the GI tract as well, a condition called eosinophilic esophagitis or EoE.
The Gluten Free RN is explaining the fundamentals of eosinophilic esophagitis, from its characteristic inflammation of the esophagus and elevated eosinophils in the blood to the common symptoms of vomiting and upper abdominal pain. She walks us through the treatment for EoE, an elimination diet or steroid therapy.
Nadine speaks to the research exploring a possible connection between eosinophilic esophagitis and celiac disease, citing a paper that found a higher prevalence of EoE in children with celiac disease than the general population as well as the case study of a woman with both celiac disease and elevated eosinophils in her blood. Listen in for the Gluten Free RN’s insight on the best EoE clinics and physicians in the country and learn why further study is needed around EoE and celiac disease!
What’s Discussed:The fundamentals of eosinophilic esophagitis
The benefits of unsedated transnasal endoscopy for children with EoE
Some common symptoms of eosinophilic esophagitis
The condition of achalasia
The treatment for EoE
The potential increased prevalence of EoE in children with celiac disease
The case study of a 30-year-old woman with celiac disease and elevated eosinophils
Nadine’s insight on the best specialty clinics for EoE in the US
Dr. Glenn Furuta’s insight on the difficulty of diagnosing EoE
Special considerations for pediatric patients with EoE
‘Unsedated Transnasal Esophagoscopy for Monitoring Therapy in Pediatric Eosinophilic Esophagitis’ in Gastrointestinal Endoscopy
‘Eosinophilic Esophagitis Associated with Celiac Disease in Children’ in BMC Research Notes
‘Eosinophilic Gastrointestinal Disorder in Coeliac Disease: A Case Report and Review’ in Case Reports in Gastrointestinal Medicine
‘Eosinophilic Esophagitis in Children and Adults’ in Gastroenterology and Hepatology
‘The Association Between Celiac Disease and Eosinophilic Esophagitis in Children and Adults’ in BMC Gastroenterology
‘Eosinophils in Gastrointestinal Disorders’ in Immunology and Allergy Clinics of North America
‘2013 Update on Celiac Disease and Eosinophilic Esophagitis’ in Nutrients
‘Eosinophilic Esophagitis: New Insights in Pathogenesis and Therapy’ in the World Journal of Gastrointestinal Pharmacology and Therapeutics
‘Incidence and Prevalence of Eosinophilic Esophagitis in Children’ in the Journal of Pediatric Gastroenterology and Nutrition
‘Management of Eosinophilic Esophagitis and Celiac Disease’ in Current Opinion in Pharmacology
‘Increased Risk of Esophageal Eosinophilia and Eosinophilic Esophagitis in Patients with Active Celiac Disease on Biopsy’ in Clinical Gastroenterology and Hepatology
‘Individuals Affected by Eosinophilic Gastrointestinal Disorders Have Complex Unmet Needs and Frequently Experience Unique Barriers to Care’ in Clinics and Research in Hepatology and Gastroenterology
‘Eosinophilic Esophagitis and Celiac Disease: A True Association or Coincidence?’ in the Journal of Pediatric Gastroenterology and Nutrition
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
If you’re just getting used to eliminating gluten from your diet, it may feel like a burden to remove dairy as well—especially if you’re a fan of comfort foods like cheese and ice cream. Why exactly do many practitioners recommend a gluten- AND dairy-free diet to patients diagnosed with celiac disease and non-celiac gluten sensitivity?
The Gluten Free RN is walking us through the similarities between gliadin and casein, explaining how the proteins found in gluten, milk and cheese impact our brains. She discusses how Marsh 1 damage from celiac disease leads to an inability to break down the sugar in milk and why we crave the very foods that are making us sick.
Nadine shares the story of a young man with autism whose health improved once his family went gluten-free, describing the well-documented gut-brain connection and how the right high-fat diet can repair the neurological system. Listen in for the Gluten Free RN’s insight around dairy replacement options and get empowered to reclaim your health with a gluten- and diary-free diet!
What’s Discussed:The similarities between the gluten and casein proteins
How the casein protein impacts the brain
The effect of Marsh 1 damage due to celiac disease
How gluten and casein proteins act as exorphins
Nadine’s recommendations for dairy replacements
How a gluten-free diet helped a young man with autism
The story of Dr. Terry Wahls
The Wahls Protocol by Dr. Terry Wahls
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
‘Globally, indigenous peoples suffer from poorer health, are more likely to experience disability and reduced quality of life, and ultimately die younger than their non-indigenous counterparts.’
A UN Report on the health of indigenous peoples points to a significant problem, but the question is WHY? Why are native populations more prone to autoimmune disorders and type 1 diabetes? Why do they have a higher incidence of alcoholism and drug addiction? And why the lower life expectancy?
The Gluten Free RN is exploring the role of food in health outcomes for indigenous populations around the world. She begins with an explanation of the dietary differences between hunter-gatherer and agricultural societies, discussing how native populations were exposed to the gluten in grains only when European conquerors came to occupy their lands.
Nadine shares her challenge in finding information about indigenous populations and celiac disease, explaining why further study is necessary. She speaks to the highly processed nature of the commodity foods provided to Native Americans in the US and the shortcomings of Canada’s Food Guide when it comes to the health of First Nations people. Listen in and learn the significance of educating indigenous populations around celiac disease and non-celiac gluten sensitivity, empowering those groups to make choices that will improve their health and quality of life!
What’s Discussed:The global indigenous population
The health status of indigenous populations
Why indigenous populations have more health issues
The lack of information around indigenous populations and celiac disease
The impact of grains on the native population
The prevalence of celiac disease in indigenous populations
Why eating healthy is a challenge for the indigenous population
The conclusions of the Prairie Nymph blog on Canada’s Food Guide
Why it’s important to educate indigenous people around celiac disease
Guns, Germs, and Steel: The Fates of Human Societies by Jaren M. Diamond
Dough Nation by Nadine Grzeskowiak
USDA Commodity Supplemental Food Program
‘Canada’s Food Guide and Native Women’ by Prairie Nymph
The Sioux Chef’s Indigenous Kitchen by Sean Sherman
American Indian and Alaska Native Health
‘Celiac Disease: A Life-Changing Diagnosis’ in Indian Country Today
‘Government Food Boxes? It’s Nothing New for Native Americans’ on WDET
UN Indigenous Peoples Fact Sheet
Summary of Aboriginal and Torres Strait Islander Health
WHO Health of Indigenous Peoples
WHO Indigenous Peoples and Substance Abuse
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
‘It’s too hard.’ ‘It’s too expensive.’ ‘It’s time-consuming.’ ‘My family won’t support me.’
There are lots of excuses why you can’t go gluten-free or Paleo, but the Gluten Free RN argues that if it’s hard, you’re doing it wrong. And today, she’s prepared to explain how to easily go gluten-free or Paleo and either maintain or regain your health.
Nadine begins with a discussion of the connection between food and pain or discomfort. She explains how the processed, non-food that most people consume causes damage that prevents us from absorbing the nutrients our bodies need. She offers insight around where to go for gluten-free, organic food and how to jump-start a gluten-free or Paleo diet.
The Gluten Free RN provides tips on taking control of your food choices, trying new foods, and gluten-free cooking—minus the cheap fillers. She also outlines a shopping list for nutrient-dense foods that will heal your leaky gut and feed your neurologic system. Listen in and learn the easy way to go gluten-free or Paleo and optimize your health!
What’s Discussed:The value in recognizing how you feel
Nadine’s response to excuses for not going gluten-free
How to avoid non-food with empty calories
The difference between organic and conventional food
Nadine’s suggestions around where to go for gluten-free food
Nadine’s advice for going gluten-free or Paleo
How to get started on a gluten-free or Paleo diet
Nadine’s shopping list for a gluten-free diet
‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
As stories about Russia continue to dominate the news cycle, you are probably familiar with the recent sanctions against the country, Vladimir Putin’s reelection, and even the expulsion of Russian diplomats from the EU and US. But what do you know about celiac disease in Russia?
The Gluten Free RN is taking a closer look at the limited information about celiac disease in Russia, giving us an overview of the country’s size and population and the likely number of celiac cases based on the global tendency. She discusses the thriving wheat production industry in Russia as well as the gluten-containing traditional Russian diet.
Nadine walks us through a presentation created by Dr. Elena Roslavtseva at the Scientific Center for Children’s Health in Moscow, sharing how the diagnoses of celiac disease changed from the 1970’s through the 2000’s, the inconsistencies with testing for celiac disease around the nation, and the challenges of maintaining a gluten-free diet in Russia. Listen in as the Gluten Free RN covers the Journal of Immunology Research’s overview of celiac disease in Russia, explaining why the reported frequency probably doesn’t reflect the true prevalence and the necessity of a mass screening.
What’s Discussed:General information about the country of Russia
Russia’s thriving wheat production industry
The first diagnoses of celiac disease in Russia
How celiac diagnoses changed in the 2000’s
The Eastern European countries that have done mass screenings
Why the data around celiac disease in Russia is unreliable
The problems associated with celiac disease in Russia
The overview presented in the Journal of Immunology Research
‘Coeliac Disease and Gluten Related Disorders in Russia and Former Soviet Republics’ by Dr. Elena Roslavtseva
‘Overview of Celiac Disease in Russia: Regional Data and Estimated Prevalence’ in the Journal of Immunology Research
‘Russia, Argentina and Canada Displace US, Europe in Global Wheat Trade’ in agriCENSUS
‘Russian Wheat Sales Expand Global Reach with Surge in Sudan’ in Bloomberg
‘Russia’s Wheat Industry: Implications for Australia’ from the Australian Export Grains Innovation Centre
‘Growing Importance of Russian Milling Wheat Worldwide’ from Solaris Commodities
‘How an Oil Giant (Russia) Came to Dominate Wheat’ in Bloomberg
‘Celiac Disease in Russia and the Former Soviet Republics’ in The Celiac Scene
Connect with Nadine:‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
When faced with new information, it’s important to consider the source. Stop for a moment and examine whether the material is coming from someone with YOUR best interests at heart. The Gluten Free RN has just returned from the Colombia University Celiac Disease Conference, and she is breaking down the information presented to determine what’s useful—and what might be tainted by the pharmaceutical or food industry agenda.
Nadine begins with a workshop led by General Mills that offered some questionable information about how grains are processed at their factories and a talk led by University of Chicago faculty on the topic of a gluten challenge. She also speaks to the differences between celiac management in the US and countries with universal healthcare like Italy and Australia.
Nadine covers new testing that detects gluten exposure in stool or urine and what that reveals about the systemic nature of gluten damage as well as her take on practitioners who perpetuate the myth that grains are necessary and nutritious. Listen in for the Gluten Free RN’s insight around pharmaceutical treatments for celiac disease and the danger in volunteering for studies backed by drug companies.
What’s Discussed:The two programs available at Colombia’s 2018 conference
How celiac disease is managed in Italy
Nadine’s frustration with the General Mills presentation
Nadine’s take on gluten-free Cheerios
Nadine’s confusion around Dr. Bana Jabri’s comments
Why the biopsy for celiac disease is problematic
Nadine’s insight on a gluten-free challenge
The systemic nature of gluten damage
Nadine’s stance on pharmaceutical treatments for celiac disease
The myth that grains are necessary and nutritious
Why it’s important to understand the source of your information
Australia’s requirements for gluten-free food
‘Your Skin on Gluten’ on YouTube
Melodies of the Danube Gluten-Free Cruise with Nadine
Books by Nadine:Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Heal
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