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Caregiver Storyteller - About Alzheimer's and Dementia Caregiving

CaringKind - The Heart of Alzheimer's Caregiving

Caregiver/Storyteller is a storytelling podcast about Alzheimer's and dementia caregiving. Every caregiver has a story to tell. Chris Doucette interviews caregivers to learn how they became caregivers, the ups and downs of their journey, and how they've changed as a result. Other podcasts teach. Through confessional storytelling, Caregiver/Storyteller helps listeners understand the first-person reality of what caregiving is actually like. While all caregiving stories convey a sense of loss, there is also a surprising amount of fortitude, loyalty, gratitude, joy, and humor. These are their stories. Music by Ravi Krishnaswami at COPILOT Music and Sound.

  • 27 minutes 3 seconds
    Alzheimer’s and Dementia Caregiving: The New Normal
    Jordana's mother began showing signs of dementia relatively early. Luckily, her father was newly retired and was able to pretty quickly shift into the role of primary caregiver. Still, caregiving became an activity shared by both father and daughter. Having a wife and mother with dementia simply became the new normal.
    10 June 2019, 5:00 am
  • 29 minutes
    Alzheimer’s and Dementia Caregiving: On your own
    Annette Perpinan met Ralph when dinner for two at a nice restaurant in Manhattan cost just $25.00. It was only when Ralph was diagnosed with Alzheimer's did Annette see the signs retroactively. With no one else to help, and a medical system that didn't seem to care, Annette took on the challenge of caring for Ralph until the end of his life.
    13 March 2019, 5:00 am
  • 34 minutes 20 seconds
    Alzheimer's and Dementia Caregiving – Red Hot Mama
    Ellen Ratner inherited a love of music from her mother who loved to sing. Ethel had three loves: her husband, music, and her daughter, Ellen, whom Ethel referred to as 'my life.' The pressure of being on the receiving end of Ethel's adoration would irritate Ellen, especially because her mother had a larger than life persona. But after her mother was diagnosed with Alzheimer's, Ellen would come to appreciate the legacy of love and music that Ethel left for her only child.
    28 January 2019, 5:00 am
  • 28 minutes 15 seconds
    Alzheimer's & Dementia Caregiving: An Embattled Son
    Steve Zellner is an only child who became the primary caregiver for his mother, Sylvia, who was diagnosed with Alzheimer's in her 80s. As the disease progressed, Sylvia became uncharacteristically aggressive, at one point sending Steve to the hospital with a brain injury. Steve shares this harrowing story, along with memories of kinder days from an otherwise idyllic childhood in New York City.
    7 December 2018, 5:00 am
  • 44 minutes 4 seconds
    Alzheimer's & Dementia Caregiving: Room for Grace
    Daniel Kenner is an actor based in New York City. As his father Buddy faced dementia and his mother Maureen battled cancer, Daniel served as one of many caregivers. With caregiving support from family, friends, and community, Daniel was able to spend time with his parents recording the stories of their lives. Working with his mother, Daniel ultimately transformed her life story into a book that explores her career as a teacher of special education students in Providence, Rhode Island. That book, “Room for Grace” was released on October 2, 2018.
    29 October 2018, 5:00 am
  • 48 minutes 46 seconds
    Alzheimer's & Dementia Caregiving: Locked Out of Caregiving
    Sue Funke is the youngest of several children and the one who lived closest to her mother during her mother's diagnosis of Alzheimer’s Disease. Sue was the first to notice Irene’s initial decline and found it difficult to convince her siblings about the significance of the signs that she saw. When they came to understand her mother's illness, the improv ethos of 'yes, and' came in handy. Despite their united front, their mother's husband found it harder to accept the seriousness of the disease, and Sue and her siblings faced not only the challenge of their mother's disease, but also the obstacle of a health care proxy held by someone else.
    15 October 2018, 5:00 am
  • 42 minutes 40 seconds
    Alzheimer's & Dementia Caregiving: You Matter
    Nancy Hendley is a Dementia Care Trainer at CaringKind. Having started her career as a senior adult day care provider, Nancy was asked to lead an Alzheimer's and dementia care program. Nancy quickly fell in love with her dementia clients and that love has fueled her passion for dementia care and training Alzheimer's and dementia caregivers. Nancy shares some of her favorite stories from her life's work.
    18 July 2018, 5:00 am
  • 43 minutes 14 seconds
    Alzheimer's & Dementia Caregiving: One Couple, Three Cities
    Max Stappler met and married his wife, Vivian, in Israel in 1968. After more than 30 years of marriage, it was a friend who first noticed that Vivian's behavior had changed. As Vivian began displaying some classic symptoms of Alzheimer's, Max's role as primary caregiver grew into a full-time job. One day, Vivian got lost in New York. It was then that Max decided to leave New York to care for Vivian in the safer locations of Florida and Colorado.
    5 July 2018, 5:00 am
  • 58 minutes 4 seconds
    Alzheimer's & Dementia Caregiving: Food As Medicine
    Occasionally, Caregiver/Storyteller interviews dementia care professionals. In this interview, we hear from Dr. Lisa Mosconi about the role nutrition plays in brain health. The science becomes personal as Dr. Mosconi shares the story of how her grandmother developed Alzheimer’s and the challenge that her mother faced as primary caregiver.
    18 June 2018, 5:00 am
  • 33 minutes 43 seconds
    Alzheimer's & Dementia Caregiving: If I Had Only Known
    Ellen Lebowitz first became a caregiver when her father was dying of congestive heart failure. While caregiving was emotionally difficult, Ellen's burden was lightened by a hospice staff who kept her informed of her father's status every step of the way. When Ellen's mother, Ruth, was diagnosed with Alzheimer's Disease, she again became a caregiver – but this time she was caregiving for someone with a disease that felt unpredictable and disorienting. Despite it all, Ellen learned to let go of conflict from the past and offer her mother unconditional love.
    16 May 2018, 5:00 am
  • 32 minutes 38 seconds
    Alzheimer's & Dementia Caregiving: A Mother with Mixed Dementia
    Cindy Legorreta's introduction to Alzheimer's began when her older friend, Kitty, began struggling to come up with common words. Kitty's home was sold to pay for her care and Cindy would visit regularly. Soon after, Cindy's mother Lucille began showing symptoms of Alzheimer's and would later be diagnosed with Mixed Dementia. A period of estrangement that kept Cindy apart from her mother would end when Cindy and her sister Val became primary caregivers for their mother. This is her story.
    2 May 2018, 5:00 am
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