Welcome to the CF Mom Tribe. A Podcast for mothers with children with cystic fibrosis, we invite you to join your tribe as hosts Paige and Martha help navigate this crazy, beautiful life as CF Moms with you.
Depression and anxiety run rampant in the lives of CF caregivers and patients. Martha shares some interesting insights into caregiver mental health needs and the importance of having them met.
In this episode, Martha and Paige discuss the pressure of feeling like you must have "it" all together. Paige shares a relatable vacation story and Martha talks about sanity without a support system. Come join the discussion for lots of laughs and even more truth.
Paige and Martha are back for Season 2 of the CF Mom Tribe Podcast. Big news on a number of fronts...plus, dealing with CF as a couple.
In Part 2 of our "Salt In The Soul" series. Paige and Martha are joined by Mallory Smith's father, Mark Smith. Mark educates us about Phage Therapy. Phage therapy is widely being reconsidered as an alternative to antibiotics. The use of naturally-occurring phages to treat bacterial infection has a contentious history in western medicine. Mark discusses all the research and treatments he looked into while trying to help his daughter, Mallory.
To donate to Mallory's Legacy Fund CLICK HERE
Purchase Mallory's Book "Salt in My Soul: An Unfinished Life"
Paige and Martha welcome a very special guest, Diane Shader Smith. Diane is the mother of Mallory Smith who authored the book "Salt in My Soul: An Unfinished Life." The book is are stories of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five. Diane relives many memories with Paige and Martha. A truly, super CF Mom.
Paige and Martha discuss the art of communication. Too many times we listen to people to be prepared to respond, we don't actually listen to what people are saying. In the CF community we need to be able to communicate with so many individuals...from family, to doctors, to insurance companies, and even with other CF Moms. Taking a step back and doing your best to understand what people are telling you could actually make your life much easier.
How do you self care? What do you do for You? Paige talks about her "Ugly Cry." Feeling the sadness rise up and not pressing it down, let the tears flow. Paige and Martha talk about taking that first step to join CF Mom retreats around the country. Paige and Martha talk about their desire to help the CF Mom community and how airing the podcast is more therapeutic than they could have ever imagined. Plus, talk about the new hit movie "Five Feet Apart" and how it helps the cystic fibrosis community. Details on a number of subjects we discussed are below.
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The life of a CF Mom has never-ending twists and turns that always keep you on your toes. Paige and her family are dealt an emotional blow at a check up appointment with her 4 year old daughter. Paige and Martha go through 10 Resiliency Traits. You'll hear anger, confusion, and sadness...and that's all OK. Your feelings are heard and felt in your CF Mom Tribe. You got this!
Welcome to the CF Mom Tribe, a podcast for mothers with children with cystic fibrosis. This is your podcast! Join hosts Paige and Martha as we take the beautiful, eventful journey of a CF Mom. In our debut episode we'll speak with Robin Modlin, the creator of Embrace, an annual retreat for mothers with CF. Robin is also the mother of a 37 year old daughter who has CF. Hear how Robin's daughter is living her best life, just married, and now living in Australia. So, sit back and relax, we are here for you. We are the CF Mom Tribe.
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