An Irreverent interview podcast for people with chronic illness, invisible illness, disability, and chronic pain.
Ever had that moment where a piece of tech or a daily habit just… clicked? 🧠✨
We’re diving deep into the world of Accidentally Accessible—those "mainstream" tools that have become game-changers for the blind and low-vision community. From the immersive audio of the Apple Vision Pro to the freedom of a Waymo ride, the line between "assistive tech" and "future tech" is blurring. 🚗💨
But wellness isn’t just about the gadgets. It’s about the things no one thinks about: 🔹 Navigating an airport solo as a woman ✈️ 🔹 The "Tuned Out Tuesday" ritual for mental clarity 🧘♀️ 🔹 Why Guide Dogs loving the movie Wicked is the wholesome content we need 🐕🎭
Whether you're looking for your next favorite Apple Shortcut or wondering if a Kickstrand is worth the hype, we’ve got you covered.
🎧 Listen to the latest episode of Invisible Not Broken now! Click the Bard Link in our bio to stream! 🔗
👇 WE WANT TO KNOW: 1️⃣ What is one thing you wish was "accidentally accessible" in your daily life? 2️⃣ What’s your #1 "must-have" travel tool?
The conversation covers disability representation in media, the impact of disability on character development, personal stories and relationships, magic and disability representation, tropes and lazy use of magic, and the portrayal of disability in 'The Magicians' and 'Doctor Who'. The speakers discuss the need for more authentic and diverse representation of disability in media, as well as the challenges and opportunities in character development for individuals with disabilities. The conversation delves into the challenges of disability representation in media, highlighting the impact and complexity of portraying disabled characters. It also explores the importance of intentionality in representation and the need to humanize characters with disabilities. The conversation delves into the power of media representation and its role in normalizing disability, as well as the importance of creativity as a skill. It also explores the significance of disability representation in animation and the responsibility of creators in getting it right.
Takeaways
Chapters
Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scott Danforth
Keywords
Ed Roberts, disability rights, activism, biography, independence, community, technology, publishing, women in activism, accessibility
Takeaways
Ed Roberts was a pivotal figure in the disability rights movement.
His activism began at UC Berkeley with the Rolling Quads.
The fight for disability rights is ongoing and requires constant vigilance.
Family dynamics play a crucial role in fostering independence for disabled individuals.
Community building is essential for effective activism.
Technology can greatly enhance accessibility for disabled individuals.
The Center for Independent Living was a groundbreaking initiative for disability rights.
Women played a significant but often overlooked role in the disability rights movement.
Writing a biography involves difficult choices about what to include or exclude.
The publishing process can be challenging, especially for underrepresented stories.
Summary
This conversation explores the life and legacy of Ed Roberts, a pivotal figure in the disability rights movement. Scott Danforth, the author of a biography on Roberts, discusses the challenges and triumphs of advocating for disability rights, the importance of community and independence, and the role of technology in enhancing accessibility. The conversation also touches on the often-overlooked contributions of women in the movement and the complexities of writing a biography. Danforth shares insights from his research and the publishing process, emphasizing the need for continued advocacy and the importance of storytelling in the fight for disability rights.
Titles
Unveiling Ed Roberts: A Disability Rights Pioneer
The Legacy of Ed Roberts and Disability Activism
Sound bites
"This is not a very well-known man."
"He had polio as a teenager."
"He loved the technology."
Chapters
00:00 Introduction to Ed Roberts and His Legacy
02:13 The Fight for Disability Rights
09:07 Independence and Family Dynamics
14:53 Building Community and Activism
21:28 Technological Advancements and Accessibility
26:57 Revitalizing the Center for Independent Living
27:24 The Legacy of Ed Roberts and Disability Activism
28:23 Unveiling the Myths of Disability Leadership
30:49 The Unsung Heroes of the Disability Rights Movement
31:54 Chronic Illness and the Overlooked Voices
33:30 The Joys and Challenges of Writing a Biography
35:21 The Process of Research and Writing
36:17 Editing and Storytelling in Biography
38:44 Navigating the Publishing Landscape
41:25 The Journey into Disability Studies
43:58 Dreams vs. Reality in Disability Advocacy
46:46 The Importance of Community and Creativity
48:23 Joy as Resistance in Activism
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Keywords
chronic illness, relationships, conflict resolution, empathy, writing process, power imbalance, emotional management, self-help, therapy, communication
Summary
In this conversation, Lisa Gray, a marriage and family therapist, discusses the complexities of relationships when chronic illness is involved. She shares insights on conflict resolution, the importance of empathy, and how to navigate power imbalances in relationships. Lisa also delves into her writing process, the significance of finding meaning in chronic illness, and practical tools for writing and publishing. The discussion emphasizes the need for understanding, communication, and the ability to adapt in relationships affected by chronic illness.
Takeaways
Conflict increases intimacy if done right.
Healthy conflict means knowing your partner better.
Stop fighting when you're already mad.
Impulse control is key in managing conflict.
Power imbalances can affect relationships with chronic illness.
Empathy must go both ways in relationships.
Finding meaning is crucial in the grieving process.
Values can guide actions despite chronic illness.
Writing can be a therapeutic process.
Use tools that work for your energy levels.
Titles
Navigating Relationships with Chronic Illness
The Art of Healthy Conflict
Sound bites
"Empathy needs to go both ways."
"Intimacy is very broad."
"Weighted blankets are so comforting."
Chapters
00:00 Introduction to Chronic Illness and Relationships
02:55 Navigating Conflict in Relationships
06:02 Impulse Control and Managing Emotions
09:07 Power Imbalances in Relationships
11:54 Empathy in Chronic Illness Relationships
14:57 Core Skills for Managing Chronic Illness
17:42 Finding Meaning and Values in Relationships
20:55 Personal Discoveries Through Writing
23:55 Building Empathy Through Curiosity
24:15 Exploring Virtual Reality and Empathy
25:39 Relationships and Support in Chronic Illness
28:05 Intimacy and Chronic Illness
30:30 The Writing Process and Tools for Writers
38:58 Publishing Insights and Resources
Transcript
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Summary
In this conversation, Brenda Snow shares her personal journey as a patient diagnosed with multiple sclerosis and discusses her book, 'Diagnosed: The Essential Guide to Navigating the Patient Journey.' She emphasizes the universal experience of navigating chronic illness, the importance of grief and acceptance, and the need for strong doctor-patient relationships. Brenda also highlights the significance of maintaining one's identity while caregiving and the power of storytelling in healing. The discussion concludes with advice for aspiring writers and the importance of sharing personal narratives.
Chapters
00:00 Introduction to Brenda Snow and Her Journey
02:49 The Universal Patient Experience
06:48 Navigating Grief and Acceptance
12:41 The Doctor-Patient Relationship
20:42 Identity and Caregiving
26:12 Finding Growth in Adversity
31:56 The Power of Storytelling
35:40 Advice for Aspiring Writers
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Keywords
TMS, transcranial magnetic stimulation, brain injury, mental health, medical gaslighting, patient advocacy, chronic illness, technology in healthcare, self-care, mindfulness
Summary
In this conversation, Jordan Hanson shares her personal journey with transcranial magnetic stimulation (TMS), a procedure intended to treat mental health issues. She discusses the initial excitement about the treatment, the subsequent negative effects she experienced, and the challenges of navigating the medical system. The conversation highlights the importance of patient advocacy, community support, and the role of technology in managing health. Jordan emphasizes the need for awareness and understanding of the risks associated with TMS and the importance of self-care and mindfulness in coping with chronic illness.
Takeaways
TMS is a procedure that uses magnetic fields to stimulate brain activity.
Jordan experienced significant negative effects from TMS, including brain injury symptoms.
Medical gaslighting is a common issue faced by patients seeking help.
Community support is crucial for those dealing with chronic illness.
Technology, including AI, can assist in managing health and communication.
Self-care and mindfulness are essential for coping with chronic illness.
Advocacy is important to raise awareness about the risks of TMS.
Family planning can be complicated by health issues and uncertainties.
Understanding the impact of chronic illness on daily life is vital.
The journey of healing is ongoing and requires patience and support.
Titles
The Hidden Risks of TMS: A Personal Journey
Navigating the Medical Maze: Jordan's TMS Experience
Sound bites
"I was called headache girl for a year."
"I want to share my story to help others."
"I have to protect myself and my energy."
Chapters
00:00 Introduction to TMS and Jordan's Journey
01:13 Understanding the Impact of TMS on Life
01:28 Introduction and Background on TMS
04:20 Understanding Trans-Cranial Magnetic Stimulation (TMS)
07:23 The Experience of TMS Treatment
10:20 The Impact of TMS on Daily Life
13:09 Medical Gaslighting and Patient Advocacy
16:13 The Journey to Recovery and Diagnosis
19:14 Community Support and Sharing Stories
22:18 The Decision to Create a Documentary
25:13 Advocacy and Future Goals
36:11 The Need for Scientific Understanding in TMS
40:42 Coping with Chronic Illness and Disability
44:52 Navigating Family Planning Amidst Uncertainty
52:54 Leveraging Technology for Brain Injury Support
59:42 Personal Growth Through Adversity
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Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin
Summary
In this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy in managing mental health. The conversation also touches on the stigma surrounding chronic illness, the impact of bullying, and practical advice for managing seizures and advocating for oneself in educational and social settings. Additionally, they explore how epilepsy is represented in the media and the need for better understanding and communication around the condition. This conversation delves into the complexities of living with epilepsy, particularly focusing on the challenges faced by women regarding medication and pregnancy. The speakers share personal experiences with the impact of epilepsy on their lives, careers, and the healthcare system. They discuss the stigma surrounding chronic illness, the importance of open communication with clients in business, and the differences in healthcare systems across countries. The conversation highlights the need for greater awareness and understanding of disability and chronic illness. In this conversation, the speakers discuss the challenges faced by individuals with disabilities, the impact of overprotection on children, and the need for inclusive spaces and universal design. They explore the healthcare systems in different countries, highlighting the disparities in access and affordability. The conversation emphasizes the importance of disability advocacy in health policy and the need for a more inclusive approach to legislation that considers the needs of all individuals, particularly those with chronic illnesses.
Keywords
epilepsy, chronic illness, mental health, therapy, support, bullying, childhood illness, accommodations, media representation, epilepsy, medication, women’s health, chronic illness, disability, healthcare, personal stories, photography, career choices, mental health, disability, healthcare, universal design, overprotection, advocacy, inclusivity, chronic illness, education, mental health, accessibility
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Chapters
00:00 Introduction to Romance Writing and Disability
05:49 Life Changes During the Pandemic
11:53 Writing Romance with Chronic Illness
17:55 Representation of Disability in Romance
24:35 The Viral Success of a Romance Novel
31:07 Writing as a Form of Self-Discovery
36:06 Navigating Writing with Disabilities
49:59 The Journey of Training a Service Dog
Summary
In this conversation, the speakers delve into the intersection of romance writing and disability representation, particularly focusing on the experiences of chronically ill individuals. They discuss the impact of the pandemic on their lives, the process of writing romance novels that feature disabled characters, and the importance of authentic representation in literature. The conversation also touches on the viral success of one speaker's romance novel, the emotional journey of writing, and the practical challenges of writing with disabilities. Additionally, they explore the journey of training a service dog and how it has positively influenced their lives.
Takeaways
The pandemic led to significant life changes and new diagnoses.
Writing romance novels became a creative outlet during difficult times.
There is a need for authentic representation of disabled characters in romance.
Readers appreciate seeing themselves reflected in literature.
The success of a romance novel can be validating for writers.
Writing can be a form of self-discovery and healing.
Navigating the writing process with disabilities requires adaptation and support.
Service dogs can provide emotional and physical support for their owners.
Community and connection are vital for those with chronic illnesses.
The journey of self-publishing can be empowering despite challenges.
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Summary
In this conversation, Tessa Lynn Hodge discusses her journey from being a licensed clinical social worker to running for office in District 23. She emphasizes the importance of community engagement, healthcare reform, and the need for authenticity in politics. Tessa shares her experiences and insights on the challenges faced by her community, particularly in rural areas, and highlights the significance of mental health accessibility and telehealth. Her campaign focuses on putting people over party and advocating for grassroots funding to ensure real change.
Keywords
disability, politics, healthcare, community, mental health, grassroots, Tessa Lynn Hodge, election, advocacy, social work
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Keywords
health advocacy, patient empowerment, healthcare system, self-advocacy, doctor visits, healthcare resources, United States of Healthcare, patient stories, healthcare challenges, AI in healthcare
Summary
In this conversation, Joyce Griggs shares her journey into health advocacy, highlighting the challenges faced by patients in navigating the healthcare system. She discusses the importance of self-advocacy, preparing for doctor visits, and managing the dynamics between patients and healthcare providers. Joyce emphasizes the need for personalized care and the role of technology, including AI, in shaping the future of healthcare. The discussion also touches on the systemic issues within the healthcare system and the importance of community support and resources for patients.
Takeaways
Advocacy is crucial for navigating the healthcare system.
Patients often face significant challenges in getting proper care.
Self-advocacy is an essential skill for all patients.
Preparing for doctor visits can improve outcomes.
Emotional management is key before healthcare appointments.
Bias exists in healthcare, affecting patient treatment.
Community support can empower patients in their advocacy efforts.
AI has potential benefits and risks in healthcare decision-making.
Personalized care is necessary for effective treatment.
Understanding insurance processes can help patients advocate for themselves.
Titles
Navigating the Healthcare Maze: A Journey of Advocacy
Empowering Patients: The Role of Self-Advocacy
Sound bites
"We need to be our own advocates."
"We are the experts of ourselves."
"Personalized care is essential."
Chapters
00:00 Introduction to Health Advocacy
02:54 Personal Journey into Healthcare Advocacy
05:53 Navigating the Healthcare System
08:25 Building the United States of Healthcare
11:34 Resources for Health Advocacy
14:23 Preparing for Doctor Visits
17:07 Managing Emotions in Healthcare
19:48 Interviewing Healthcare Providers
22:49 Addressing Systemic Issues in Healthcare
28:02 Navigating Healthcare Access Challenges
30:38 Addressing Power Imbalances in Healthcare
34:26 The Impact of Bias in Medical Treatment
35:22 Evolving Perspectives in Medicine
37:23 Utilizing Technology for Patient Advocacy
42:04 Building Community and Support
46:51 Envisioning a Better Healthcare System
50:20 end cap.mp4
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Unpack the shocking influence of money in politics with us! We dissect how large donations and Super PACs are shaping elections and explore the crucial role of grassroots movements and community engagement in fighting back. Discover strategies for building political support, navigating the path to candidacy, and fostering meaningful conversations across political divides. We delve into the complexities of political discourse, the power of empathy, the necessity of intergenerational dialogue, and the urgent need for term limits. Learn about the lasting impact of Citizens United and why engaging marginalized communities, especially the disability community, is paramount. Hear personal stories on how family shapes political views and the undeniable importance of grassroots support for impactful campaigns.
money in politics, super pacs, large donations, grassroots movements, community engagement, political campaigns, running for office, candidacy, political discourse, empathy in politics, intergenerational dialogue, term limits, citizens united, disability vote, disability community, marginalized communities, family and politics, grassroots support, election influence, campaign strategies
Hosted on Acast. See acast.com/privacy for more information.