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Discovering Dementia

Penny Bell

How one person's dementia story led to a journey …

  • 30 minutes 15 seconds
    S3 EP2 Dementia and Loss

    The Alzheimer’s Society’s latest campaign in the UK is called The Long Goodbye.


    It centres around the potential feelings of grief and loss that it says both carers and those living with dementia can feel through the course of the disease.


    Penny explores what this means and talks to carers Ame Chauhan and Candy Morris to hear their stories. She also speaks to Marion Child from the Alzheimer’s Society to find out why the campaign was launched.


    CONTENT WARNING: This episode contains conversations about loss, grief and dying.


    Alzheimer’s Society https://www.alzheimers.org.uk/


    The Dementia Support line can be reached by calling 0333 150 3456

    https://www.alzheimers.org.uk/about-us/contact-us


    For more information about The Long Goodbye campaign https://www.alzheimers.org.uk/about-us/dementia-news-and-media/long-goodbye#:~:text=This%20moving%20portrayal%20offers%20a,how%20devastating%20it%20can%20be.


    Hosted and produced by Penny Bell


    Theme Music by Leila Mitwally


    @discoveringdementia

    @dementiapodcast


    Hosted on Acast. See acast.com/privacy for more information.

    25 April 2024, 10:20 am
  • 30 minutes 8 seconds
    S3 EP1 Manny's Samosa Saturday for Dementia UK

    Fundraiser extraordinaire Manny Singh Kang is a Volunteer Ambassador for Dementia UK.

    He's also a Wolverhampton Wanderers football fan who launched and now runs a popular samosa stand at home games, through which he's raised thousands for charities. As you'll hear, he's also inspired many people along the way.


    The Samosa Saturday event featured here raised an incredible £6567.94 for Dementia UK.


    Links for Manny:

    To donate - https://www.justgiving.com/fundraising/mkang

    Instagram

    X (Twitter)

    Facebook


    Dementia UK is a charity that provides Admiral Nurses (specialist dementia nurses) for families affected by dementia.

    https://www.dementiauk.org

    To speak to an Admiral Nurse, call the Dementia UK Helpline on 0800 888 6678 or email [email protected]


    Hosted on Acast. See acast.com/privacy for more information.

    20 February 2024, 6:05 pm
  • 1 minute 54 seconds
    Coming soon: Trailer for Series 3

    Discovering Dementia is back for Series 3.


    Penny Bell gives an update on her plans to share more dementia stories with you.


    This award-winning podcast began when Penny's mum was diagnosed with dementia. They have been documenting their journey together and sharing what they discover in the hope that it would help others.


    This series will be a little different for Penny. Her mum's dementia has progressed so she is not able to be as much a part of the recordings as before. But the stories continue.


    Keep listening for more from this award winning podcast.


    Links:

    Instagram

    Facebook


    Music: Leila Mitwally



    Hosted on Acast. See acast.com/privacy for more information.

    20 February 2024, 3:26 pm
  • 15 minutes 11 seconds
    Memory Walk Mini Series 3 - Kelly Inwood, Alzheimer's Society Regional Manager
    In her role at Alzheimer's Society, Kelly Inwood manages a team of people who work directly with those affected by dementia. She sees on a daily basis the importance of the help the Society can offer.That is why she supports the Memory Walk, a series of 24 sponsored walks across the country, aimed to raise funds for research, services and to give hope to people living with dementia now.To find out more, go to www.memorywalk.org.ukAlzheimer's Society also runs a support line. If you are affected by dementia, worried about a diagnosis, or you are a carer you can call for more information.Dementia support - 0333 150 3456Opening hours: Mon to Weds: 9am – 8pm, Thurs and Fri: 9am – 5pm, Sat and Sun: 10am – 4pmTo get in touch with the podcast – www.discoveringdementia.co.uk Insta - @discoveringdementia X -@dementiapodcastTheme music - original composition by Leila Mitwally

    Hosted on Acast. See acast.com/privacy for more information.

    24 August 2023, 12:00 am
  • 13 minutes 53 seconds
    Memory Walk Mini Series 1 - Helen's Story
    In the first episode of this mini series, Helen Pike generously shares her story, talking about caring for her husband Geoff, who has a form of dementia called Primary Progressive Aphasia. She also shares her experience of Memory Walk, which she and Geoff did together last year. Memory Walk is a series of sponsored walks held in September and October across the UK by the Alzheimer's Society. It's free to sign up and open to all. The events bring together people who understand the impact of dementia, mixing the buzz of the crowd along with quiet moments of remembrance. Every pound raised goes towards funding vital research and support for those affected by dementia. To sign up and find out more, go to www.memorywalk.org.ukCONTENT WARNING: This episode contains content some listeners may find upsettingAlzheimer's Society also runs a support line. If you are affected by dementia, worried about a diagnosis or a carer you can call for more information.Dementia support - 0333 150 3456Opening hours: Mon to Weds: 9am – 8pm, Thurs and Fri: 9am – 5pm, Sat and Sun: 10am – 4pmTo get in touch with the podcast – www.discoveringdementia.co.uk Insta - @discoveringdementia X -@dementiapodcastTheme music - original composition by Leila Mitwally

    Hosted on Acast. See acast.com/privacy for more information.

    24 August 2023, 12:00 am
  • 9 minutes 29 seconds
    Memory Walk Mini Series 2 - Charlotte Murray, Dementia Adviser
    This Autumn, thousands of people are signing up for free to do an Alzheimer's Society Memory Walk. The sponsored walks raise money which will go towards supporting those affected by dementia.But who are the people behind that support?Dementia Adviser, Charlotte Murray, tell us about her work for Alzheimer's Society and explains what she does in her role.The Memory Walk brings together people who understand the impact of dementia, mixing the buzz of the crowd along with quiet moments of remembrance. To find out more, go to www.memorywalk.org.ukAlzheimer's Society also runs a support line, which Charlotte mentions. If you are affected by dementia, worried about a diagnosis, or you are a carer you can call for more information.Dementia support - 0333 150 3456Opening hours: Mon to Weds: 9am – 8pm, Thurs and Fri: 9am – 5pm, Sat and Sun: 10am – 4pmTo get in touch with the podcast – www.discoveringdementia.co.uk Insta - @discoveringdementia X -@dementiapodcastTheme music - original composition by Leila Mitwally

    Hosted on Acast. See acast.com/privacy for more information.

    24 August 2023, 12:00 am
  • 16 minutes 29 seconds
    Mini Series 5 - Brian's Story
    In the last of this mini series of seasonal interviews, Brian Gamble, a Volunteer Ambassador for Dementia UK, talks about how important it is to share as much information as possible on dementia, particularly on things that can affect finances, from the very start, as soon as a diagnosis is made.He also shares some of the things that worked for him and his late wife when it came to celebrating Christmas.CONTENT WARNING: This episode contains discussion about dying and the death of a loved one.With original music by Leila Mitwally.www.dementiauk.orgDementia Helpline Number is 0800 888 6678 – open Monday to Friday 9am-9pm; Saturday and Sunday 9am-5pm. Open Bank Holidays, except 25 December.To get in touch – www.discoveringdementia.co.uk @discoveringdementia @dementiapodcast

    Hosted on Acast. See acast.com/privacy for more information.

    23 December 2022, 12:00 am
  • 16 minutes 46 seconds
    Mini Series 4 - Maureen's Story
    In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas. Maureen Winfield has first hand experience of dementia, after spending many years caring for her late husband, Michael. She generously shares what she has learnt and how she has approached Christmas. She also talks about her role as a Volunteer Ambassador for Dementia UK, as well as her love of crafting. With original music by Leila Mitwally.CONTENT WARNING: This episode contains discussion about death and dying, and the loss of a daughter to cancerwww.dementiauk.orgDementia Helpline Number is 0800 888 6678 – open Monday to Friday 9am-9pm; Saturday and Sunday 9am-5pm. Open Bank Holidays, except 25 December.To get in touch - @discoveringdementia @dementiapodcast

    Hosted on Acast. See acast.com/privacy for more information.

    22 December 2022, 12:00 am
  • 20 minutes 4 seconds
    Mini Series 3 Adria Thompson - Be Light Care - Online practical tips for dementia care
    In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.Caring for someone living with dementia can mean you sometimes find yourself in situations where you’re not sure of what to say, or how best to respond. How you react can make all the difference.Adria Thompson, from Be Light Care, is a speech language pathologist from the USA who provides regular content on social media platforms with dementia care tips. If you have any tips you’d like to share, do get in touch at @discoveringdementia or @dementiapodcast.To find Adria, look for:@belightcare or www.belightcare.comWith original music by Leila Mitwally

    Hosted on Acast. See acast.com/privacy for more information.

    19 December 2022, 12:00 am
  • 20 minutes 21 seconds
    Mini Series 1 Rachael Webb - Admiral Nurse at Dementia UK
    In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.Dementia UK is a specialist dementia nurse charity, providing support to families affected by all forms of dementia. Their nurses are known as Admiral Nurses.Rachael Webb works as an Admiral Nurse and joins Penny to talk about her role, including her work on the dementia helpline, her expertise in Lewy body dementia and her thoughts on how to make things run smoothly at Christmas.To contact the Dementia UK Helpline, call 0800 8886678https://www.dementiauk.org/https://www.dementiauk.org/twelve-tips-for-christmas/With original music by Leila Mitwally

    Hosted on Acast. See acast.com/privacy for more information.

    18 December 2022, 12:00 am
  • 23 minutes 30 seconds
    Mini Series 2 Sue Hinds - Dementia Carers Count
    In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.Sue Hinds is Head of Services at Dementia Carers Count, a national charity that supports family and friends looking after someone with dementia. It provides short courses, telephone support and lots of information online that can help unpaid carers in their caring role and to look after themselves whilst they do this.To call for support or advice – Monday to Friday, 9am-5pm (UK) – 0800 652 1102Text CARE to 85258 – 24 hours a day, 7 days a weekhttps://dementiacarers.org.uk/https://dementiacarers.org.uk/blog/christmas-festivities-and-celebrations/With original music by Leila Mitwally

    Hosted on Acast. See acast.com/privacy for more information.

    18 December 2022, 12:00 am
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