WeHaveAVoice

WeHaveAVoice

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!

  • 12 minutes 32 seconds
    Rare Disease Day
    Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
    13 February 2024, 5:19 pm
  • 13 minutes 5 seconds
    New Guidelines to Revolutionize Care for Huntington's Disease Patients
    Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
    21 December 2023, 2:10 am
  • 13 minutes 38 seconds
    Bunny Clark and the 10th Annual Huntington's Heroes Walk
    Bunny Clark talks about The Walk for Huntington's Disease May 28th
    23 May 2023, 7:29 pm
  • 22 minutes 20 seconds
    Erin Paterson - Huntington's Disease Heroes
    21 April 2023, 11:02 am
  • 20 minutes 10 seconds
    WeHaveAFace! What's next?
    Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
    16 March 2023, 2:50 pm
  • 21 minutes 11 seconds
    Worthlessness
    Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
    29 September 2022, 1:40 pm
  • 38 minutes 35 seconds
    Coffee Talk with Kevin and Jen (Chat #7)
    Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community
    1 July 2022, 2:15 am
  • 1 hour 22 seconds
    Coffee Talk with Kevin and Jen (Chat #6)
    Jen and Kevin talk about hope, testing and other topics
    27 June 2022, 4:10 pm
  • 44 minutes 5 seconds
    Coffee Talk with Jen and Kevin (Chat #5)
    Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25
    16 June 2022, 2:15 pm
  • 28 minutes 16 seconds
    Kevin speaks about memories and nurturing relationships
    Kevin talks about memories of his wife Sheila and how it's important to nurture friendships
    14 June 2022, 11:00 am
  • 44 minutes 42 seconds
    Coffee Talk with Jen and Kevin (Chat 4)
    Jen gets an unexpected call and discussion ensues.
    11 June 2022, 5:40 pm
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