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BloodStream
BloodStream Media
BloodStream Podcast
- 25 minutes 45 secondsNavigating the Currents: Interferons in the Treatment of Polycythemia Vera
On this special episode of the BloodStream Podcast, we explore interferons in the treatment of polycythemia vera (or PV). This episode is brought to you by PharmaEssentia.
If you’d like to learn more about polycythemia vera, check out our sister show PV Pod: Stories from the Marrow (brought to you by BloodStream Media and PharmaEssentia).
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3 May 2024, 7:00 am - 38 minutes 37 secondsOn the Shoulders of Giants is a hit (!) and I’m Fine is back
Hear about the premiere of the On the Shoulders of Giants film from HFA Symposium with Patrick and Amy. Plus the I’m Fine segment is back with Luke Pembroke and Hazri Aris is featured on the latest Elite Athletes segment.
Show Notes:
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Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
On the Shoulders of Giants Film
Watch the movie and host a screening: ontheshouldersfilm.com
Beyond our Blood
Watch the short films and download the facilitation guide: beyondourblood.com
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26 April 2024, 7:00 am - 38 minutes 55 secondsNew NBDF CEO, Phil Gattone
We have newly appointed NBDF CEO, Phil Gattone with us sharing his background and his vision for the organization and community. And, we have the story of the first commercially dosed patient of hemophilia B gene therapy. Hear from Jamison Buxton, the father of the patient…who also happens to be the director of the HTC.
Show Notes:
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Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
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12 April 2024, 7:00 am - 45 minutes 9 secondsDr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
Dr. Glenn Pierce is with us to share what to expect from the upcoming WFH Congress in Madrid, and Amy sits down with President and CCEO of the Plasma Protein Therapeutics Association (PPTA), Anita Brikman. FLOW co-host Jessica Richmond sits in for Patrick and we’ll finish up with an Elite Athletes segments will feature bleeding disorder community member, Ricardo Ramirez.
Show Notes:
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Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
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22 March 2024, 7:00 am - 44 minutes 4 secondsHighlights from ASH with Dr. Akshat Jain
We’re back with Dr. Akshat Jain who shares highlights in bleeding disorder research from ASH 2023, plus the differences between hemophilia A vs hemophilia B gene therapies with Dr. Mark Redding. We close out with our latest Elite Athletes segments featuring bleeding disorder community legend, Perry Parker. Don’t miss it!
Show Notes:
Subscribe:
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
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8 March 2024, 8:00 am - 1 hour 8 minutesHFA CEO Dan Kelsey and Rare Disease Day tribute
HFA CEO Dan Kelsey joins Patrick and Amy to respond to recent organizational changes, followed by Blood Brother, Carl Weixler, who shares a bit about HFA’s history, mission, and current state. Also, a tribute to Rare Disease Day, led by voices from BloodStream Media.
Show Notes:
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Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
Check out the Everyday Life Foundation hosting Bombardier Blood
Everyday Life Foundation Legislative Asks
This Rare Disease Day segment is brought to you by Genentech. Genentech has several resources to help caregivers navigate hemophilia including stories from other members in the community. Please visit www.thecommunityhelps.com to learn more.
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23 February 2024, 8:00 am - 28 minutes 50 secondsNBDF welcomes new CEO; HFA responds
NBFD landed a new CEO, and HFA has responded to recent organizational changes; plus, we hear from Dr. Mark Reding and Dr. Steven Pipe about their excitement over gene therapy being added to the treatment landscape in hemophilia. We close with @theHemeNP, Maya Bloomberg talkin’ Rare Disease Day.
Show Notes:
Subscribe:
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
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9 February 2024, 8:00 am - 49 minutes 35 secondsPreserving Tainted Blood History and Bath Bleeds
We’ve got a terrific interview with Kathy MacKay and Dana Kuhn about the efforts the Committee of Ten Thousand (COTT) is taking to preserve documents from the tainted blood tragedy. And another Elite Athletes segment featuring blood brother and cyclist, Giovanny Pernudi. Oh …and Patrick had a bath bleed.
Show Notes:
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To learn more about the Committee of Ten Thousand and to get involved, visit www.COTT1.org
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
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26 January 2024, 8:00 am - 45 minutes 27 secondsShakeup at HFA and a brand new Gene Therapy segment!
It’s a New Year and BloodStream is back with a terrific episode. Major changes at @HFA leave Patrick wondering about the future of one of our beloved national organizations and we have folks from the FAIR initiative and CHES to share their 2024 vision for the women in bleeding disorders movement (heck yeah!). Plus, a brand new segment this year on gene therapy (whoo!) - all this and more!
Show Notes:
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Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
Join the Movement - Equity for Women with Bleeding Disorders
CHES - Programs for Women with Bleeding Disorders
Take Action Today! - Click HERE
It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.
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12 January 2024, 8:00 am - 40 minutes 35 secondsSNL screws up sickle cell.
We’ve got SNL screwups, the mainstream acronyms continue to butcher rare blood diseases. Plus, we’ve got a new ELITE ATHLETES segment with Anthony Pezzillo (who recently became an uncle; or expanded his uncledom) and I’m Fine, this time with a focus on the caregiver experience with Jessica Bombardier. We’ll get into it all, AND MORE, on this episode.
Show Notes:
Subscribe:
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
I’m Fine and Elite Athletes are presented by @SanofiUS
Sanofi seeks to expand the idea of what’s possible for the hemophilia community. Take a deeper look at the science behind hemophilia and an important connection between factor activity levels and potential activities at LevelsMatter.com
Sanofi aims to raise the bar for the patients living with hemophilia. Reimagine what’s possible by visiting Rareblooddisorders.com to hear more about Sanofi’s dedication to the bleeding disorder community.
Watch "I'm Fine": A panel discussion webinar led by Patrick with The National Bleeding Disorders Foundation
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4 January 2024, 8:00 am - 33 minutes 41 secondsThe World Health Organization (WHO) gets it wrong
The World Health Organization made a decision that has heads scratching that could seriously impact hemophilia patients across the globe and a new I’m Fine segment with blood brother, Justin Levesque. Plus, Worlds AIDS Day with Maya Bloomberg and Patrick is pain-free (or close to pain-free) for the first time in a long (!!) time.
Show Notes:
Subscribe:
Presenting Sponsor:
Takeda, visit bleedingdisorders.com to learn more.
I’m Fine and Elite Athletes are presented by @SanofiUS
Sanofi seeks to expand the idea of what’s possible for the hemophilia community. Take a deeper look at the science behind hemophilia and an important connection between factor activity levels and potential activities at LevelsMatter.com
Sanofi aims to raise the bar for the patients living with hemophilia. Reimagine what’s possible by visiting Rareblooddisorders.com to hear more about Sanofi’s dedication to the bleeding disorder community.
Watch "I'm Fine": A panel discussion webinar led by Patrick with The National Bleeding Disorders Foundation
Connect with BloodStream Media:
8 December 2023, 8:00 am - More Episodes? Get the App
About BloodStream
Ask The Expert - A BloodStream Media Podcast
Powering Through Podcast
BloodLine Podcast
B's in a Pod
Utah Hemophilia Foundation Education Channel
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